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Thursday, April 12th, 2012
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What exactly IS “cocktail party speech”? I see the term used all the time on NLD websites, but I still don’t know what they really mean by it. From what I can tell, it basically boils down to “talk that neurotypicals find boring or can’t make sense of,” but in that case, why isn’t a compulsion to make small talk considered a sign of a disorder?
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Comments: Read 5 or Add Your Own.
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Wednesday, April 11th, 2012
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Wednesday, March 21st, 2012
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Hey! I'm not sure if this community is still active, but I am really struggling at work to stay focused, organized, and patient. I forget things all the time and I've been accused of not listening. My supervisor is sure I have ADHD (which is possible)...
Do you have any tips for surviving the office?
Thanks!
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Comments: Read 5 or Add Your Own.
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Tuesday, August 16th, 2011
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| Posted by: | mel06. |
| Time: | 9:36 pm. |
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Hello All! My name is Melissa, and I'm a para-educator for a special ed department in a public high school. I'm part way through my master's degree and teaching certificate, and for one of my classes I'm doing some research on what people think about including multimedia and technology in instruction for students with IEPs, FSPs, and 504 plans. I'd really appreciate any and all participation in my project.
If you are the PARENT or GUARDIAN of a child with an IEP, FSP, or 504 plan, please fill out my short, anonymous survey: http://www.surveymonkey.com/s/9GMNBFP
If you are a STUDENT or a FORMER STUDENT with an IEP, FSP, or 504 plan, please fill out my short, anonymous survey: http://www.surveymonkey.com/s/9BTKGJF
If you are a certificated TEACHER, please fill out my short, anonymous survey: http://www.surveymonkey.com/s/93NBY3D
Thank you so much for all your help!
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Comments: Add Your Own.
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I was diagnosed with NVLD when I was in college, around 2003, I think.
My neuropsychologist gave me no real suggestions for how to cope besides "read into a tape recorder and play it back" to help with my reading comprehension -- which, by the way, does NOT work for me, because I start to treat audio recordings that aren't music like background noise and tune them out, even when I'm actively trying to listen. (What I've recently discovered is this sort of can work, but only if I am following along with the text in front of me, and that was only because I felt like experimenting with audiobooks and following plot. Way to go, doc.)
I've recently had major communication issues with one of my (now possibly ex-) friends, because ze tries to explain things to me and I *do not understand*. Nor do I know how to have hir explain it to me so that I can comprehend what ze's trying to say.
Clearly I didn't magically pick up all the coping skills and workarounds I could have if I'd been diagnosed as a child. I feel really lost. I literally don't know where to start, nor do I know exactly what I need help with without having a list of common NLVD related deficits in front of me.
So, do y'all have resources you can point me to? My normally great google-fu has failed me.
Or do you have suggestions of things you've learned that help you deal with a particular problem NVLD presents for you?
Thanks!
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Comments: Read 15 or Add Your Own.
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Hi everyone,
I know that this is a very quiet com but I’d like to get some advice in regards to financial matters as affected by mental health. I should probably state for the record that I’m Australian so there may be certain things that I am/am not eligible for as opposed to the many Americans here, but I’d still like advice; I may be able to find some equivalent, you never know.
Some years ago I took out a car loan. I also took out insurance covering the loan itself in case of illness, disability and such. And I made certain to keep six to nine months ahead on payments at all times.
Early last year I had a sudden decline in mental health. I’d had cyclic problems since I was a child in single digits, but for reasons I won’t go into these were never addressed. While I’d previously attempted to seek treatment as an adult it’d never worked, and I’d never been actually diagnosed with anything. The closest I came to treatment was my GP writing me a script for anti depressants (and weren’t the side effects fun!) which I quickly stopped taking, and me finally being diagnosed with NLD a few years back. However, this latest bout was the worst I’d had in fifteen years and it hit just as I took a new job. I was unable to fulfil my contract and became unemployed. On the upside I finally was diagnosed as Bipolar/Major Depressive Disorder, so after all these years I was finally able to get some treatment. I still have about three months missing from my memory about that time and the side effects from the meds are still giving me trouble, but I finally felt I was able to return to work in November.
Unfortunately, due to a variety of reasons, finding employment is proving difficult and in the meantime my finances are screwing me up against a wall. I am on Newstart payments with a sickness component. The sickness component runs out in two weeks time when I’ll be referred to a consultant who can maybe help me in finding suitable work. I’m very much looking forward to it. However, this does not help my current financial position. I have finally come to the end of my prepaid amounts on my car loan and my bank manager is saying “GIMMIE!” The financial pressure I’m under is pretty huge. Family and credit cards are helping me a lot, but both of them are reaching limits.
I went in to speak to my local bank branch, and found them very helpful. As I said, I’d taken out insurance with the loan and I was told that my circumstances would probably enable me to claim it. I was given the relevant forms and went to my psych. While she filled them in she made a number of points, which basically come down to this: if I put down ‘mental illness’ on any official documents, this will follow me for life. It will affect my ability to get private health insurance. It will affect my ability to get home loans. It will affect any number of things down the track. It’s unfair, it’s prejudice, it’s often illegal, it’s the way the wretched world goes.
So basically I have two options:
A: Claim the insurance against the car loan. It’ll take a very large chunk out of what I owe and will relieve a lot of immediate pressure on me.
B: Not claim and avoid long term stigma that will affect some important future goals.
It’s really a matter of time; either I get screwed short term, or I get screwed long term. Both of these are very difficult positions. Can anyone familiar with these issues offer some advice, suggestions, or even just share their story?
(btw, cross-posting this to the nldadult discussion group; apologies to those who get this twice)
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Comments: Add Your Own.
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Wednesday, October 6th, 2010
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Is anybody else here terribly bad at....
video games?
I know, what the hell does this have to do with NLD? Except, I think it does, since my hands do not want to seem to react in time to the game; I have a hard time remembering which control does what, and overall I'm just wildly uncoordinated.
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Comments: Read 6 or Add Your Own.
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Friday, October 1st, 2010
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The Pepsi Refresh Everything campaign is giving away millions in grant money to fund non-profit ideas. I am a 33-year old woman who was diagnosed as an adult, with Asperger’s, which is on the Autism Spectrum, in 2004. A friend of mine (who will be the director) and I have applied for part of this grant award. Our idea is to establish a Center for adults with Autism, in Central Maryland. Currently, a kind friend drives me an hour north (sometimes 1.5 to 2 hours in Beltway traffic) to Baltimore for any Autism resources I may use. There are few resources for Autistic adults in Central (Annapolis, Anne Arundel County, Bowie, Prince George’s County, etc)., Maryland, and many for children. My goal is to provide resources for when the autistic children in this area transition into adulthood. The favor I am asking from you is for one free click and vote. You get a vote Per day for our idea for October. Please vote daily or as often as possible. The more votes we receive, the more likely we are to get the grant award. Please share this information with your contacts, your family, friends, co-workers, and acquaintances. We have to be in the top two to receive funding. 4 Clicks (I highly recommend you sign in with your Facebook account, it is easier that way). 1. Please go to http://www.refresheverything.com/autismadultsmd 2. Click the Browse Ideas and Vote button on the right-hand side. 3. Next, please log in on the bottom left-hand corner of the screen. You can either use your Facebook account or your email address to create an account with a password. Please press the vote button on the right. 4. Please do this every day or as often as possible! Please forward this to as many people as you can. Hey, as long as your checking your email or Facebook, why not click on over? Thank you for voting for my endeavor. If you have any questions, please feel free to respond to this email. Voting starts on October 1st and ends on September 31st. Have a blessed day. Bridget PS. If you or someone you know is affected by Autism, your vote every day truly helps. Thank you.
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Comments: Read 3 or Add Your Own.
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Wednesday, April 7th, 2010
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Do any of you know of any support groups for people with NLD? Especially in the LA area? I would even take a group for people with Aspergers. :)
Is anybody interested in starting a group?
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Comments: Read 1 or Add Your Own.
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I was just wondering if anybody else has asked for accommodations on the job?
I was involved in a really wacky situation, partially related to NLD. I was targeted by my boss after I had complained to the Union, and was set up to be fired. Because of my NLD it took me a very long time to figure out what was going on, and when it was time for me to blow the whistle, I had a very difficult time explaining things to other people.
My boss was basically keeping me in one place, and then writing me up for not being in another. But there was also a terror campaign involved, and they were intimidating me, saying one thing verbally, but implying other things nonverbally, facial expressions, body language, tone of voice, etc. So it took me forever to figure out what was going on, and it was a whole big mess. I think a big part of why they disliked me initially was because I didn't pick up on those subtle cues, and my boss is very two faced and things never mean what you think they do, etc.
Anyway, I took myself back to the union, admitted I have a disability, and they came up with a set of accommodations for me.
For example: Tasks must be given to me in writing. I must be told how to report that I am done with tasks I must be given a set deadline for finishing the task.
Some other ones too.
I never wanted to ask for accommodations because I didn't want anybody to know that I am different, but the thought of having the accommodations that they want me to be given just makes me feel so much relief, and I like the idea of not having to "fake" things anymore. I want it to be understood that yes I am different, and yes I do need a little help, but in general I am fine. I have been getting by for years, and faking it, and nobody would guess I have NLD, I just seem a little "off" but I want to start being more successful. I want to do more than get by.
How do the rest of you feel about accommodations, and coming out of the disability closet? We have an invisible disability, but we do have the right to be accommodated for.
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Comments: Read 1 or Add Your Own.
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When I'm in anxiety mode, people give sugestons on how to handel things, alot of times there re isssues with said sugestions-- things I see as clearly not viable, however, if i "shoot down" too many things, i get yelled at for being negitive/ not trying/ shooting them down. ' A) what am i suposed to do? be all "SURE I'LL TRY THE THING THAT WON'T WORK"? and then pretend its all okay
b) is this an NLD thing or is it me?
Worst part is my vocal affect is shit when i'm stressed. So, I sound bitchy.
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Comments: Read 2 or Add Your Own.
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Saturday, November 28th, 2009
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So today I was reading about/discussing with people the perception of disability from the non-disabled population. This got me to remembering a pretty disastrous visitor I had a year or so ago. I'd been in one of those internet friendships for nearly ten years with an American lady, who, despite strong misgivings on my part, insisted on actually meeting me face-to-face. The friendship did not survive. One of the big issues was that she expected me to decide where we were going, when we were going, and how we were going to get there. My spatial awareness is literally non-existent; I'm in the bottom 1% of the population, according to my neuropsychologist, and I have difficulty seeing at night as well. I explained all this to my friend, at length and a number of times over. As an added bonus, public transport in the place I was living in at the time was limited during the day and nonexistent during the night. So, we didn’t go out at night and she told me it was fine. When I drove her places during the day, she utterly refused to help me with maps or directions. She would hand me the street directory at stop lights though, that was something, but she was really impatient when I got lost or was confused. I ended up taking her to a small zoo one day and, sick of it all, handed her the map. A3 sheet, colourful, very simple. Pretty drawings of animals. She freaked the fuck out and I took it back and navigated again. I can read a map, just...slowly. And with lots of mistakes. And when she went back she told me how terrible and hurtful it was that I didn’t take her out at night, it was all my fault she had a terrible time, that I didn’t take her where she wanted to go... Just to give you an idea of her level of functioning, before she even came we spent three hours- THREE HOURS- IMing each other about several rainforest tours offered by the same company. She suggested these, absolutely refused to make any sort of decision between them. Instead she whittered, blathered, cried, “What if I choose the wrong one?!” for THREE HOURS and, after my exasperated offers to pick one myself, flip a coin, draw slips out of a hat, contact the company itself for more information, decided that she simply couldn’t pick and we wouldn’t go on any of them. The only places she actually told me she wanted to go was a graveyard and a planetarium, and as it turns out, it was closed when we got there. She decided she wanted to go, but didn’t bother to check that it would actually be open. *sigh* The thing that pisses me off is that she would tell me that she has ‘tendencies’ towards ASDs. And then she expected me to take complete care of her, and when she went back to the USA, told me that I probably didn’t know it, but my interpersonal relations suck. No! Really? So I guess this post is aimed at three separate topics: trouble getting around, clashes with people with different disorders (because if this chick didn’t have OCD and anxiety issues I’ll eat my keyboard without condiments) and clashes with people who tell you they know all about ASD/NLD because they have it, and then go onto point out well known characteristics of these disorders like they’re your personal failings and that you should really get over it. I’d love to hear others’ take on these things.
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Comments: Read 2 or Add Your Own.
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hey you guys, i dont know how long its been since ive posted. i have social issues with girls. they hate me and i dont even know why. i can never speak their language, and dont try to hang out with them anymore. they usually dont even give me a chance. i was just wondering if people had the same problem and what they did about it? i get along with guys great,but girls just hate me as soon as they meet me.
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Comments: Read 6 or Add Your Own.
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| Posted by: | daj00ntje. |
| Time: | 12:45 pm. |
| Mood: | curious. |
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Hi everyone!
Just found this community, nice to know there are other people out there with the same problems!
I've got a question: do any of you have a problem with new situations? It is a symptom for NLD, but I've never heard of people who really have it, besides myself. I seriously freak out every time I have to do some thing I've never done before. Can't sleep, some times cry, shakes, nerves etc. Would like to know if there are people out there who have this as well and how they deal with it?
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Comments: Read 5 or Add Your Own.
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I've got a 3 bed aparment. and its HELL to keep in ordre
any sugestions? My brain just ... well you guys get it.
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Comments: Read 2 or Add Your Own.
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When I was young, it was very clear that I was "different". I was socially awkward, and often failed to pick up on cues and clues when I was being teased or mocked. As a result, I spent a fair amount of time being talked to by school counselors and psychiatrists. None of them successfully diagnosed me, but most didn't do too much harm and one was able to help me develop coping skills.
Now I can make small talk fairly comfortably, and while I'm slower than most when it comes to picking up on social cues, I'm apparently not slow enough to seem odd. In other words, I can pass for neurotypical.
But I never forget that I'm not, because I still feel the same way inside. I don't talk to many people about my NLD (not until I trust them, and only if it seems appropriate), but when I do they're invariably shocked (or claim to be) and say that they had no idea.
How about you? How well do you "pass"? Do you keep your diagnosis secret from others?
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Comments: Read 8 or Add Your Own.
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I was diagnosed with ADD this week. I went for testing at my college. The first time I met the school psychologist, I told him all of my symptoms and that I suspected NLD. He set me up for an appointment to be tested in one month. So I went to that appointment, and when I came in, he said he looked at all of the information I had written in my intake sheet, and my school records, and he believes I have a classic case of ADD. He said that he didn't want to go forward with testing me for learning disorders because he felt the ADD was so obvious. He sat at his computer, pulled up an online rating scale for ADD, asked me the questions, and then declared that I have ADD because I got 79 points, and 70 and above equals ADD.
I felt so angry. I insisted that he did test me for learning disorders. I am a special ed teacher, and I had tested myself, and I have a profound disorder in the area of visual-motor integration. I looked at him, and I said "I cannot tie my shoes, I think it is more than ADD". He agreed in the end to move forward with testing, but I had to make another appointment to come back in a month. And I just realized right now that I have no idea when the appointment is going to be, and I have lost the card he wrote it on. Typical ADD, NLD, whatever it is.
I am just wondering if any of you have been diagnosed with ADD and later found that to be the right diagnosis, or the wrong diagnosis, and your experiences with ADD/NLD in general. I know that they are comorbid, and I can accept that I may have both, but I want to make sure that I get the NLD diagnosed, and I want a formal report and everything. I want my IQ done, I want this all done right, and I think I deserve to have that.
How dare this school psychologist do that to me.
And he gave me nothing in writing, and he just kept insisting that I need to get on a schedule for eating, sleeping, and exercise, and I sat there insisting that I know that, but I have no clue how I am going to make it happen.
Thanks for listening to me. I swear, we need a rage journal for people with NLD. I hate when people don't understand what it is, or think that we are making it up. I am so glad that I finally have an understanding about who I am, who my son is, and why we act the way we do. Now I can just explain to people the way things are, instead of internalizing it, and blaming myself for being weird.
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Comments: Read 5 or Add Your Own.
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